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Individuals' Willingness to Share Private Genome Data: Towards a Non-Personal Privacy Calculus

Published: 2017 Dezember

Buchtitel: Proceedings of the Pre-ICIS Workshop on Information Security and Privacy
Verlag: AIS
Organisation: Association for Information Systems (AIS)

Referierte Veröffentlichung


Notwithstanding the potential personal and societal benefits of genomics, large scale genome data analyses bear novel information privacy risks for individual genome data donors and their relatives. Extant research on individuals’ willingness to share their private genome data has largely focused on eliciting individual motivating and discouraging factors. Little is known about the causal relationships between such factors and what drives individuals’ willingness to share their genome data. Drawing on the privacy calculus, we develop a model of individuals’ willingness to share their genome data. Specifically, we introduce a notion of social distance into the privacy calculus and conceptualize benefits and information privacy risks as a second-order construct consisting of benefits and respectively risks for oneself, close others, and distant others.


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